March 3, 2014
American Recall Center
Below is an announcement from Dr. Mario Trucillo of the American Recall Center, a brand new medical information site aimed at bringing consumers the most up-to-date FDA information in easy to understand, plain language terms:
For millions of people, a healthy and active lifestyle is possible because of prescription drugs. Thousands of Americans have regained mobility and personal freedom through implanted joints and other prosthetics. As advancements in medical science continue and healthcare professionals take on more and more patients, it can be difficult for many patients to get the attention they need in order to fully understand all available treatment options.
The American Recall Center was established to keep all this information at the fingertips of patients. We know that treatment information can be difficult to find, so we've organized it conveniently here in a single spot. Additionally, we understand that oftentimes patients cannot understand the lingo used by health professionals in describing treatment options. We've taken the time to demystify medical terminology and explain common procedures, drug interactions and more. Our goal is to empower patients by providing facts in an easy-to-use database filled with plain language.
One of our top priorities at the American Recall Center is helping patients stay up to date and informed about alerts from the FDA with Patient Safety Alerts. Registered individuals can opt to receive patient safety alerts, real-time, customizable notifications that come directly to your email. Once youíve registered with us, all you need to do is select the medical devices and prescription drugs that affect you from our online database. As long as you keep this list up to date, you will always be in the know concerning the most recent FDA alerts regarding your personal health and treatment plans. When a pertinent FDA announcement is issued, youíll be immediately updated by email. In this way, you can be sure that you always have the most current information about issues that affect your health.
February 18, 2014
Getting creative can be very helpful in the process of recovery from any addiction. The creative arts can provide time to get in touch with one's inner-self and can provide a form of expression for feelings that cannot be easily identified or put into words. Taking some time to focus on our recovery in a creative way allows us to relax without relying on the negative behaviors that we are trying to avoid. We Are Diabetes now has a Recovery Projects section on our Resources page that offers a list of ideas, projects and questions to help you get started in getting in touch with your recovery on a creative level!
February 12, 2014
National Eating Disorder Awareness Week!
National Eating Disorder Awareness Week (or Nedawareness) is February 23rd - March 1st, 2014! Check out what YOU can do to help spread awareness this year! Throughout the month of February we will be sharing recovery themed resources in honor of this important campaign!
Walden Behavioral Care has a wonderful article about the minute to minute challenges we can sometimes face in recovery.
Any type 1 diabetic who has struggled with feelings about food and emotional eating should check out Ginger Vieira's book: Emotional Eating With Diabetes. Ginger's personal coaching website, Living in Progress, also has tons of great articles and videos on staying healthy, emotionally and physcially, with T1D!
Our friend Cynthia Zuber at Diabetes Light shared this wonderful article with us and we want to make sure any T1D who has ever felt discouraged about their diabetes reads it!
Tune in next week for more recovery inspired resources and dont forget to mark National Eating Disorder Awareness week (February 23rd - March 1st) on your calendar!
February 3, 2014
Acceptance in Recovery
Today's guest post is by Amy Cox. Amy has struggled with Diabulimia for four years. Her courage and commitment to finding freedom from her eating disorder makes her a huge hero in our eyes! We Are Diabetes is proud to share some of Amy's recovery journey.
I've been in recovery from diabulimia twice, now. That's not how it's supposed to work- or so I thought. Recovery is meant to be final! A done deal- so long, eating disorder- hello, new me! While that may be possible for some, for me, recovery has been a long process with lots of stumbles and falls along the way.
I began the hard process of recovery over two years ago with two and a half months of inpatient treatment at Melrose Center, but six months after I was discharged, I relapsed. In retrospect, I realize that the relapse didn't just hit me on the head like a giant wielding a hammer- I never fully accepted what it would take for me to have a genuine recovery. I made deals with myself: "I'll stay in recovery as long as I stay below X weight. I'll stay in recovery as long as I can exercise several hours a day and try to keep some semblance of my pre-recovery body. I'll stay in recovery as long as nothing happens that makes me feel I'll need to use my eating disorder to cope." [full article]
January 29, 2014
Press Release: Three opportunities to attend a very special conference in 2014: Diabetes Sisters Weekend For Women!
The 2014 Weekend for Women Conference Will Convene Women of All Ages with All Types of Diabetes, Policy Makers, Healthcare Professionals, Business Leaders, Investors and Advocates to Discuss Key Issues Facing Women with Diabetes Today.
WASHINGTON, DC (January 27, 2014) -- Organizers expect hundreds of women with diabetes from 25 different states to ascend upon Washington, DC for the three-day power-packed Weekend for Women Conference scheduled for Friday, April 25- Sunday, April 27, 2014 at Embassy Suites Old Town- Alexandria. This will be the seventh Weekend for Women Conference hosted by DiabetesSisters and the first time it has convened in Washington, DC area.
As the only conference of its kind worldwide for women with diabetes, the event offers three days full of opportunities for women of all ages with all types of diabetes from all walks of life to gain the tools, strategies, resources, and connections needed to accelerate their success in every area of diabetes management. Participants come to learn about the latest diabetes products, build their support networks and attend education sessions conducted by diabetes experts and well-known diabetes advocates. Diabetes Technology Executive, Claudia Graham, MPH, PhD, will deliver the keynote address and share lessons learned from her 40+ years of living with diabetes. [full article]
January 27, 2014
Eating Disorders Program at Brandywine Hospital
In the summer of 2010, Brandywine Hospital made caring for people struggling with eating disorders a priority by opening the Eating Disorders Program at Brandywine Hospital. This was the first of its kind in Chester County and in the region, and among very few in the country to address both the psychological and medical aspects of these disorders. Since its debut, the Eating Disorders Program has drawn over 1,000 patients from Pennsylvania and across the country. Brandywine accepts both male and female patients ages 13 and older. They have a specialised treatment track for diabetics that you can read more about here.
The program is in network with most insurance providers, some Medicaid programs and Medicare. Program staff work closely with participants, their families and insurers so that the extent of coverage is understood in advance of admission. Most insurance plans cover the major portion of costs.
January 22, 2014
New recovery resource: Center for Change!
We Are Diabetes is excited to add Center for Change to our Recovery section!
Center for Change provides a caring and nurturing environment where women can heal under the constant supervision of a large staff of seasoned medical, psychological and nutritional experts. These individuals have been carefully selected because of their expertise in treating both the outward symptoms and underlying causes of eating disorders.
Center for Change's message that "hope is real" is woven through the entire treatment experience. Those who receive treatment at Center for Change often comment that the Center has "given them back their life" and restored feelings of freedom that they haven't felt for a very long time. Read more about the specific treatment track Center for Change offers for T1D's in our Recovery section!
January 20, 2014
New recovery resource!
We are happy to share our newest addition to our special list of highly qualified facilities across the United States that have the education and capability to treat type 1 diabetics who suffer from an eating disorder!
A licensed, Joint Commission-accredited behavioral hospital, Eating Recovery Center was founded by a team of leading experts whose goal was to fuse evidence-based findings and innovation to create a center of excellence for the treatment of eating disorders. Eating Recovery Center offers the full spectrum of eating disorders treatment services for female and male adults, adolescents and children, including Inpatient, Residential, Partial Hospitalization and Outpatient programs.
When it comes to lasting recovery for you, your loved one or your patient, the expertise of the treatment team is of critical importance. Eating Recovery Center brings together a team of compassionate experts with robust experience in assessment of and intervention for eating disorders that recognize that the true challenge to sustainable recovery occurs outside the treatment environment and following discharge. As a result, Eating Recovery Center's treatment philosophy is rooted in not only individualized assessment and clinical intervention for eating disorders, but also aftercare planning. The multidisciplinary treatment team collaborates with patients, families and outpatient professionals to develop a post-discharge plan of care that addresses each patientís distinctive medical, psychological and situational challenges to protect their recovery.
In addition to its comprehensive, Denver-based treatment programs offering the full spectrum of eating disorders care, Eating Recovery Center provides centers of excellence for the treatment of eating disorders across the country. Sacramento-based Eating Recovery Center of California offers Partial Hospitalization, Intensive Outpatient and Outpatient Services, as well as Outpatient Services in Fresno, and The Moore Center offers Partial Hospitalization, Intensive Outpatient and Step-Down Services in Bellevue, Washington.
January 15, 2014
"Good Like This" - by Peter Arpesella
It isn't often that you come across a lead character in a novel who has T1D. It's even more uncommon to come across a book that offers an honest and accurate portrayal of the physical and emotional strain that living with a chronic illness can create for a T1D. But we found one!
Actor, writer and fellow Type 1 diabetic Peter Arpesella recently wrote a book called Good Like This which offers the reader an opportunity to experience the daily life of a T1D who is burned out on his chronic illness. The story explores his life as a husband, a father, a person living with T1D and many other exciting plot points that we won't give away!
Peter Arpesella is an actor and award winning writer, originally from Rimini, Italy. His family owned the historical Grand Hotel, where family friend, Federico Fellini, set his award winning "Amarcord". When he discovered that storytelling is a lot more fun than investment banking, Peter moved to the States to work as an actor and writer. Peter's voice can be heard in the English version of the Oscar winning film "Life Is Beautiful," and in Dreamworks Animation "Madagascar 3," among others. He can be seen in the box office comedy hit "This Like A Man" and on the award winning TV show "Mad Men."
You can learn more about Peter at peterarpesella.com.
January 13, 2014
Helpful links for the new year!
Even if you are not making any New Year resolutions, January can be a time where we contemplate the new year ahead of us and examine some of our habits. Here are two great articles that offer advice on sticking with new healthy habits and staying positive!
- Six Questions To Make New Habits Stick
- Silencing the Negative Inner Voice
December 17, 2013
Welcoming Kelly Walker RD, CDN as a WAD Partner.
We Are Diabetes is proud to announce our newest addition to our WAD Partner Program: Kelly Walker RD, CDN is a very special resource for us as she is a type 1 diabetic herself! Her experience in nutrition and working in an eating disorder treatment facility has given Kelly valuable insight to many of the issues that type 1 diabetics who suffer from eating disorders may struggle with. Her experience in working with those who suffer from diabulimia, as well as her personal experience with managing type 1 diabetes makes Kelly Walker a highly valuable health care provider within the diabetes community! We asked Kelly to share a little more about her life with T1D and her experience in working with diabetics who struggle with an eating disorder and this is what she has to say:
"I became a dietitian due to my interest in the way that food has the ability to affect and heal the body -my body in particular. I have had type 1 diabetes for the last 27 years and I'm still fascinated with the challenge of trying to maintain an even keel. It's tough! There are so many factors that impact blood sugars and while growing up. I can honestly say I struggled with wanting to take a vacation from it all.
In high school, I became witness to a way of thinking that defied everything I'd been taught about diabetes when I attended diabetes camp. I heard kids talking about not taking their insulin, eating whatever they wanted, and still being able to lose weight. I have to admit, at the time, the idea sounded appealing. Thankfully, I was able to put it out of my mind and focus on the things I enjoyed. Singing, art, psychology, and the science behind nutrition monopolized my thoughts throughout my schooling. My desire to understand the the body and to be able to teach someone an effective and compassionate way to care for themselves became my goal.
It wasn't until I began my career working at a treatment center that specialized in eating disorders that all the puzzle pieces began to fit together. As I learned more about maladaptive coping mechanisms, anxiety, OCD, self validation by numbers and body image I was able to understand more about why this type of eating disorder develops with type 1 diabetes. I have been fortunate enough to work with multiple people struggling with diabulimia and feel privileged that I can relate on such a personal and vulnerable level with my clients.
I recently moved to New York City and am working as a dietitian for a non-profit organization where my work with eating disorders and diabetes management has continued. I also have a small outpatient private practice that I started in February 2012. I partnered with WAD because I believe strongly in the message they deliver, the purpose they serve, and the education and resources they provide. I am thrilled to have been asked to be part of such a wonderfully experienced and valuable organization."
December 9, 2013
We Are Diabetes National Provider Network: Fran Weiss LCSW-R, BCD, DCSW, DPNAP, CGP Psychotherapist, serving the New York City area.
Fran Weiss offers individual, couples and group therapy at her private practice located in Manhattan, NY. She treats anxiety, depression, trauma, body image, disordered eating, and other emotional and interpersonal issues. Fran has also worked with many T1Ds!
Fran is known for her pioneering work in the psychodynamic causes of disordered eating, and her work in putting together interdisciplinary teams to treat patients with mind/body problems. She has been the Senior Psychotherapy Consultant to the New York Obesity Research Center, St. Luke's Roosevelt Hospital Center since 1979 and serves as Associate Clinical Professor at Icahn School of Medicine at Mount Sinai (FKA Mount Sinai School of Medicine) NYC. Fran is also the book reviewer in eating disorders for the American Journal of Psychotherapy and has a continuous seminar series on PsyBC.
Traditionally trained in psychodynamic and psychoanalytic talk therapy, Fran has investigated, studied, and integrated when appropriate, many forms of therapeutic intervention into her practice. With over 30 years of experience in Psychotherapy, Fran Weiss has developed a large toolbox of skills from which to draw. We admire Fran's own thoughts on choosing a therapist and the role of therapy in someone's life:
"Choosing a therapist is serious business. Credentials are important. These I have. However, it is the fit that counts. The work in therapy is co-created by both the therapist and the individual. I believe that change can happen. It takes time and effort on both parts, and partnering with someone who "gets it" and helps you move to where you want to go."
"Optimally, therapy is a growth experience. Life can be transformed into something powerful and authentic. Successful treatment results in you moving on with your life, having gained a new ability to interact and connect with people in ways that work, makes sense to you, and that you can be proud of. Living your life fully and richly."
Fran's website even has a special section for diabetics who may struggling emotionally with their chronic illness called Diabetes and You. We wish that we could clone Fran Weiss and make her available to every diabetic that we know!
December 2, 2013
Integrated Diabetes Services
All T1Ds struggle with finding Endocrinologists and CDEs (Certified Diabetes Educators) who actually GET IT! It can be tough to try to explain all the factors that go in to living with T1D and it can be tougher still when trying to explain them to someone who tells you that they are a "diabetes expert" when they have never lived a single day as a type 1 diabetic! That's why we want every single T1D to know about Integrated Diabetes Services!
The entire staff at Integrated Diabetes Services all have type 1 diabetes. Yes, that's right, all of them! This special team of CDEs (lead by Gary Scheiner - AADE's 2014 Diabetes Educator of the year) focuses on improving blood sugar control, teaching advanced self-management skills and working with you to reach your individual goals.
Our good friend Ginger Vieira recently wrote an article about this amazing team!
November 11, 2013
BDI's Diabetes TLC Program
The Behavioral Diabetes Institute offers a wealth of resources and information for type 1 diabetics. Their unique Diabetes TLC Program is one of our favorite! Diabetes TLC is a one-to-one connection program for adults with type 1 and type 2 diabetes. The program was co-founded and co-designed by Behavioral Diabetes Institute's psychology staff and a T1D volunteer. The program pairs clients with a TLC "teammate" who can best relate to their needs, based on age, gender, type of diabetes and current challenges. This would be a perfect resource for a T1D who may not be suffering from an eating disorder, but may feel alone or burdened with their diabetes and/or those who would like assistance improving their self management skills.
Click here for past news and updates.
We Are Diabetes is a proud sponsor of the
University Eating Disorder Awareness Walk!
Presented by Hynes Recovery Services
Sunday, May 4th, 2014
Nickerson Field, Boston University
|Below is an announcement from Dr. Mario Trucillo of the American Recall Center, a brand new medical information site aimed at bringing consumers the most up-to-date FDA information in easy to understand, plain language terms:
For millions... (more)
There is so much to say about this that I think it would be more helpful if you reached out to me and we can discuss via email. Please email me at email@example.com.
There is a lot of inform... (more)
When you're a type 1 diabetic you are capable of eating any type of logical mealplan. Many do find that keeping their carbs under 100g a day and trying to eat lots of healthy fats and protein works really well for stab... (more)
|Getting creative can be very helpful in the process of recovery from any addiction. The creative arts can provide time to get in touch with one's inner-self and can provide a form of expression for feelings that cannot be easily identified or put ... (more)
|Hi there. Just learned that I have Diabetes 1 less than a week ago and wanting to make it as positive and healthy a transition as possible. I am somewhat worried about weight gain and am really interested in any great books, resources, websites th... (more)
|National Eating Disorder Awareness Week (or Nedawareness) is February 23rd - March 1st, 2014! Check out what YOU can do to help spread awareness this year! Throughout the month of February we will be sharing recovery themed resources in honor of t... (more)
|I'm going to get extremely personal here, but I think I need to in order to get the help I need. I am self diagnosed with diabulimia. It hasn't been years for me, I was only diagnosed Type 1 in October of 2012. However, I find myself going in stag... (more)
|One of our WAD clients is doing an amazing job in her recovery journey and has been brave enough to share some of it it publicly! Check out her most recent entry here: [link]http://5tephany.blogspot.com/2014/02/mama-got-big-ol-belly.html?spref=fb[... (more)
|Have you checked out the section on WAD titled "Communicating to a loved one who is struggling with Diabulimia" yet? If you click on the Diabulimia tab you can find this on the left side bar :)
I think it is wonderful that you are asking ... (more)
|I'm a parent of someone with diabulimia. I'm interested in hearing from others what family and friends can do - what's helpful, what's good to say, what not to say, etc.? What should we know? Thank you.