News and Updates
June 30, 2015
Follow us on Twitter next week at the Masterlab Sessions!
Founder and Executive Director Asha Brown will be attending the Diabetes Advocates Masterlab, conducted at the Friends For Life Conference in Orlando, Florida. Make sure you're following us on Twitter so you can hear all about it!
June 16, 2015
Duke University Study on T1D and Disordered Eating
Duke University currently has an online questionnaire that is part of a study on ED-DMT1. Please consider taking some time to share your voice, and your experiences!
June 10, 2015
Dr. Denise Faustman Ready for Next Phase of Diabetes Vaccine Research
A phase II clinical trial testing the ability of the generic vaccine bacillus Calmette-Guérin (BCG) to reverse advanced type 1 diabetes has received approval from the FDA! The approval of this trial, which will shortly begin enrolling qualified patients, was announced at the 75th Scientific Sessions of the American Diabetes Association (ADA) by Denise Faustman, MD, PhD, director of the Massachusetts General Hospital (MGH) Immunobiology Laboratory and principal investigator of the study.
The five-year trial will investigate whether repeat BCG vaccination can clinically improve type 1 diabetes in adults between 18 and 60 years of age who have small but still detectable levels of insulin secretion from the pancreas. We highly recommend that all our T1D friends know the facts about this exciting trial. This is indeed very exciting news, but it's important to understand that this is only the beginning of this trial, and we are at least a decade away from truly understanding the results from phase II. We hope that those in our community who are struggling with ED-DMT1 understand that although this clinical trial does indeed offer more promise that any of the other ridiculous "cure" claims we've all read about (and that every person we know sends us a link to), one has to be alive and healthy to potentially be a part of whatever is next in Dr. Faustman's tireless dedication to finding us a cure.
If you're interested in learning more about Dr. Faustman, and would like to recieve updates on the Phase II Trail visit faustmanlab.org.
May 18, 2015
The "Double Life" of Bulimia Nervosa: A Patients' Perspective
We came across this article recently and wanted to share it here with our community. Many of our clients have not only struggled with insulin omission, but with bulimia as well. Both these types of "purging" have a great deal of shame and stigma attached to them. This article offers insight and wonderful perspective on the struggles a person with bulimia may face.
May 06, 2015
Congratulations Erin Williams!
We Are Diabetes Co-Founder and Client-Care Coordinator Erin Williams has just completed her LPN degree! She graduates this week, and plans to move forward in pursuing her RN degree later this Fall. We are so proud of her hard work and determination!
April 28, 2015
The Eating Disorders Information Gateway
We are excited to share a great new resource with you! The Eating Disorders Information Gateway is a resource offered by the Eating Recovery Center Foundation that provides a single portal through which the eating disorders community can access a variety of materials to advance public understanding of eating disorders.
The Eating Recovery Center Foundation, a 501(c)(3) nonprofit, was established in 2012 to be a national eating disorder resource for patients, families, caregivers and treating professionals. As one of its first major efforts, the Foundation launched the Eating Disorders Information Gateway in summer of 2014. The Foundation will also be supporting cutting-edge eating disorder research and treatment scholarships. To learn more about the Foundation and its important work, please visit www.EatingRecoveryCenter.com/Foundation.
April 08, 2015
The Lingering Shadow: Life after an Eating Disorder
Written by Amy Gabbert
"There is nothing to writing. All you do is sit down at a typewriter and bleed." - Ernest Hemingway
I’m at the optometrist clinic where I work as a technician about to get my eyes examined. I go into my own chart and input my health history; I don’t want my co-workers to see it all, even though I did purposely omit my psychiatric history. I put in the latest information about my A1c and most recent blood sugar (high, of course. It seems to be a universal law that when you’re going to the doctor and you know they’ll ask what your last blood sugar was, it’s going to be high and you'll be subjected to a lecture). My co-worker comes in to check my vision and complete the work-up before I see the doctor. I’m nervous about her seeing my diabetes information. She doesn't notice the A1c and breezes over the work-up. The doctor then comes in and skims over my chart. My stomach turns. I hate to think what she thinks about me, about my lack of control over my disease, my high A1c. She doesn't say anything, just completes the exam. After she’s through, my co-worker goes over some charting information I’m not familiar with. She talks about never clicking “uncontrolled” for diabetic patients, “even when they’re A1c is like, eight,” obviously a number she finds deplorable. I say, “an A1c of eight isn’t terrible,” to which she replies, “well, what’s yours?” She scrolls up to look at what I reported and I say, “Oh, let’s not,” and she closes my chart and says, “well, technically I was the technician who worked with you so I can look at your chart whenever I want.” I know she’s joking, but it doesn't stop me from feeling paranoid and fearful.
I'm a private person. I don't divulge intimate details to many. Even the people closest to me typically have to work to get me to open up. One of the personal topics I am most reluctant to reveal is my experience with an eating disorder. Only my immediate family and a handful of friends know about my struggles. There can be awkward questions from people unaware of my illness about what I was doing when I was sick with an eating disorder. I wasn't in college, I didn't have a job; treatment was a full-time occupation for me at the time. I've gotten quite good at glossing over those years and stretching the truth so I can avoid talking about my struggles. I also dodge the questions about my diabetes complications; people seem incredulous that I'm so young and have such health problems.
Even though I am careful about what I disclose to people, I worry that everyone knows about my eating disorder. Sometimes I think I'm being too transparent when I talk about mental illness or weight discrimination (in a general way, of course, as not to implicate myself) and everyone knows about my eating disorder. When I think about people finding out my secret past with an eating disorder, I am paralyzed with fear and anxiety. I practice what I would say if I was ever put in an awkward situation where someone unexpectedly brought that up. I have thought of responses to every situation imaginable. [continue reading]
March 25, 2015
Type One Diabetes and Counter Regulatory Hormones
Say what? That's what we said too, but after reading this article we had to share it with our community! If you've ever had hours of unexplained highs or feel like lately your CGM is showing a major roller-coaster ride on a daily basis you may find some of the answers to your questions in this helpful read!
March 19, 2015
Relapse Prevention Plan
This Relapse Prevention Plan allows you to create your own unique tool to use when things get rocky; and let's be honest, recovery is full of rocks!
March 10, 2015
Eating Disorders Affect the Body, Mind, and Brain
Many articles about eating disorders focus on weight and appearance rather than the physical, emotional, and social consequences of these devastating illnesses. This article from the Huffington Post talks briefly about the ways the brain can be affected when someone has an active eating disorder and why it's important to change the way we talk about eating disorders. You can also check out the full discussion Huff Post Live hosted in which participants delve deeper into the ways eating disorders can affect the sufferer both socially and physically.
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