News and Updates
February 26, 2017
National Eating Disorder Awareness Week Is Here!
One of the topics we’re focusing on this year is the fact that type one diabetics of all ages struggle with eating disorders. Although the media primarily focuses on teens and "twenty-somethings", a large percentage of adults also struggle with ED-DMT1. It can often be even harder for this population to make the decision to seek treatment; they have families, full time jobs and commitments that don’t allow for a lot of time for the self-care that is necessary for someone working on recovery. Many people above the age of 30 avoid eating disorder treatment because it normally caters to younger people. Older adults may feel also feel ashamed to be dealing with an eating disorder in this phase of their lives.
Fortunately, there are many treatment options beyond inpatient (if individuals are healthy enough to stay at home). Partial hospitalization, intensive outpatient, or building up your own personalized recovery care-team (contact us at email@example.com for more information about how to do this) are all options to consider. The most important thing for any adult T1D struggling with an eating disorder is to know is that there ARE options and that they are not alone!
NEDA has a lot of cool stuff to help support anyone who wishes to do their part to advocate and spread awareness this week - so make sure you check out all their resources!
February 05, 2017
It's Finally Here! Prevention And Recovery From Eating Disorders In Type 1 Diabetes: Injecting Hope
We're beyond thrilled to announce that We Are Diabetes Board Member Dr Ann Goebel-Fabbri's book "Prevention And Recovery From Eating Disorders In Type One Diabetes: Injecting Hope" is finally available for purchase!
Prevention and Recovery from Eating Disorders in Type 1 Diabetes: Injecting Hope sheds light on an often overlooked and misunderstood issue: the problem of eating disorders in women with type 1 diabetes – referred to by lay people and the media as "diabulimia" and characterized by insulin restriction as a means of calorie purging for weight loss.
Drawing on a series of recent interviews and over 16 years of research and clinical experience with this unique phenomenon, author Dr. Ann Goebel-Fabbri provides groundbreaking insight into the lives of women who have recovered from eating disorders in type 1 diabetes. She explores the condition's origins, its effects on the lives of those affected, and possible paths to recovery. Also included are suggestions for prevention and treatment as well as practical and inspirational advice from now-recovered women.
Prevention and Recovery from Eating Disorders in Type 1 Diabetes is a valuable guide for patients and loved ones, diabetes treatment teams, and eating disorder clinicians.
Currently there's a 20% discount available! Enter code IRK71 at checkout!
January 26, 2017
Worried About The Affordable Care Act? Turn Your Worry Into Action!
A message from We Are Diabetes Founder and Executive Director Asha Brown:
There’s a great deal of uncertainty for those who live with a preexisting condition right now given the current political climate. This issue is deeply personal to every individual and family that lives with chronic illness. I think it’s important that we channel our anxiety and concern about the future of the Affordable Care Act (ACA) into effective action.
As an avid worrier I know all too well how much worrying about the unknown can consume every waking moment of my day; leaving me useless to function in the “now” of my life. I used to let my personal self-care fall apart and I’d forgo my commitments and responsibilities; just so I could give myself more mental and physical space to worry even more! As my personal recovery continues to deepen I’ve become more tuned in to how negative the effects of worrying about the unknown can be.
Now, when faced with a situation where a resolution remains to be certain I do my best to ensure that I’m focusing on what is within my control in order to promote a favorable outcome. In regards to the unknown fate of the ACA I know the best thing I can do to support the continuation of this lifesaving program is to participate in the initiatives that the Diabetes Patient Advocacy Coalition (DPAC) generates.
The following is a quote from DPAC’s Founder and CEO (and my dear friend) Christel Marchand Aprigliano:
"Every day we make a choice to be healthy, especially for those with diabetes and ED. We face internal struggles, which is up to us to conquer and seek support from trusted sources, like WAD.
But how much influence do you have over the external struggles that we're facing right now in the U.S. political system? Where are the resources and support for us in government? Who will help to keep us motivated and fighting for our continued health on a political advocacy front? More than you think. And DPAC can help.
Diabetes Patient Advocacy Coalition (DPAC) is the WAD of diabetes policy advocacy. We are the patient voice in diabetes policy and we are an easy way to take action and share our stories with policy makers. By joining DPAC (it's free!), your message on protecting the health of all people with diabetes and ED can be quickly sent.
DPAC focuses on safety, quality, and access to diabetes medications, devices, and services for all people with diabetes. We share information on issues that we all need to know, and then with a few clicks, you can send messages to your policy makers (and insurers, too!).
We fight every day to stay healthy as individuals. DPAC helps us fight to stay healthy as a community."
Please take a few moments to sign up for DPAC and help us protect a program that has allowed so many of WAD’s clients to finally be eligible for insurance. There is still time to protect this lifesaving program!
December 30, 2016
The Last New Year’s Resolution You'll Ever Need
The following is a guest post from Positive Psychology Coach (and our good friend) Leann Harris:
New Year. That time of year where people try and decide if they have lived up to the goals they made 366 days ago and whether they should bother making new ones. The concept of creating New Year’s resolutions is enticing: a year from now we could be a better person than we are right now. Who doesn’t want that? Changing my calendar out for another year is a great opportunity to change my life, right?
This thought is tricky. While I certainly have goals I want to reach, it’s the way I go about reaching them that’s become important to me. While I certainly was on the “New Year, New Me” bandwagon, I’ve created one resolution that surpasses all other resolutions and I’d like to share.
Who Says I Must Change?
What am I listening to that says I’m not good enough just the way I am? If I say I want to lose 10 pounds, I need to ask myself why. I listen and try to identify the voice in my head that is trying to convince me I should do it. Is there some old message from long, long ago that doesn’t help me anymore running through my head? Is it someone else's voice, or the generic "well everyone thinks so" message? If so, I may ignore it altogether or go to my next measurement.
Will This Change Make Me Happy?
I can certainly find the potential benefits to almost any idea that pops into my head. Maybe I’d like to fit into my jeans better or I think I’d be "healthier." I can imagine how happy I’d feel. Wait, but why? Why do I think that changing my weight will lead to more happiness? This happiness measurement is the one that eliminates 99% of my ideas for change. Typically, anything I come up with does not lead to true happiness. They are signs of a sense that "I am not doing enough" or "I should be MORE." If asking myself “more WHAT?” returns only silence, then I know that this is not a good idea. Using my energy to run away from my feelings of unworthiness or sense of inadequacy does not make me happy. Making strides towards something that feels good—that makes me happy and content. Trying to make ourselves feel worthy by being perfect doesn’t truly help. Ten years from now I will not look back and congratulate myself for finding another excuse to hide from my own sense of failure. Perfectionism is a false shield we wield to try and pretend we have everything we need when we actually feel the opposite.
Is This Kind?
Let’s say my idea to lose weight makes it through my first two criteria and I decide to go for it. My #1 rule for this process is to make sure I am being kind to myself and I give myself permission to abandon the idea at any point. This used to make me nervous—isn’t that just an excuse to quit? What I’ve found is that NO resolution is worth being cruel to myself, punishing my body, or being mentally exhausted all the time. Kindness is my guide. If I don’t know how to be kind to myself and still accomplish my goal, I have a much bigger problem! Perfectly completing my external goal of fitting into clothes is not worth sacrificing my mental health.
What Do I Need?
The last thing I ask myself is "what am I really looking to feel?" I don’t ignore my urges for change, because something in me trying to get my attention. Most of the time when I feel a need to overhaul something about myself, it’s because I’ve been busy and haven’t been meeting my own needs. Maybe I need a "me day" where I do whatever I want—guilt free. Maybe I need a new book (or two) and actually take the time to read it. Maybe it’s a massage or a bubble bath. Even if it’s only 30 minutes crammed into my day, that urge to change with New Year’s resolutions can be completely transformed into a reminder to practice healthy habits and not add the stress of self-imposed pressure. Accepting that I am worthy enough to take time out of my life to care for myself gives energy and meaning to everything else I do.
So create one resolution for yourself and for all of your New Years to come: be kind to yourself and trade in self-perfectionism for self-care.
Leann Harris has lived with type 1 diabetes for 16 years. As a Positive Psychology Coach for people with diabetes at Delphi Diabetes Coaching, she focuses on the mental fears and emotional challenges of thriving with diabetes. She is passionate about helping others learn resilience skills, counteract shame and blame, and overcome diabetes burnout. Her motto is "Know Yourself, Know Your Diabetes."
December 09, 2016
The T1D Guide For Mental Health Care Providers!
Are you having trouble finding a Therapist or other mental health care professional who understands T1D? There's only a handful of mental health practitioners in the US that are fully capable of treating someone with the dual diagnosis of an eating disorder and type one diabetes. So what do we do?!? We educate! This is a great resource from our friends at Beyond Type 1 to give to your mental health provider!
November 18, 2016
We Are Diabetes is proud to introduce a new program offered by our Partnering organization DiabetesSisters: DiabetesSistersVoices!
DiabetesSistersVoices is a place for women living with diabetes to share resources, pose questions and participate in important discussions with other women! Join this research study today at DiabetesSistersVoices.org. Your participation will help DiabetesSisters gather important research for women living with diabetes and you’ll make some new friends at the same time!
October 13, 2016
The Big Blue Test is Here!
Between October 14, 2016, and November 14, 2016, participants perform 14-20 minutes of physical activity and then report their results at BigBlueTest.org or by using the iPhone or Android smart phone app. Each entry will result in $1 donated to three US-based initiatives. One of those initiatives is We Are Diabetes!
The Big Blue Test is a program of the Diabetes Hands Foundation that rallies communities to experience the impact that small changes can have on their health. Taking the Big Blue Test is easy:
Since 2010, over 100,000 people helped themselves while helping more than 10,000 others. Each Big Blue Test helps you (because you got your body moving) and helps others through a life-saving donation made on your behalf. This has translated in $250,000 awarded by Diabetes Hands Foundation in Big Blue Test grants in the past 4 years.
- You test your blood sugar.
- You exercise for at least 14-20 minutes.
- You test again.
- You share your experience on BigBlueTest.org or through the app for iPhone or Android.
For every Big Blue Test result that get logged between October 14th and November 14th, 2016, Diabetes Hands Foundation grants $3 in support of people with diabetes in need around the world. Big Blue Test grants awarded this year will benefit three initiatives (each will receive $5,000). To do this, we’re seeking to reach 150,000 Big Blue Test entries by November 14th. Help yourself and help others. Get active, #JoinTheMovement, and do the #BigBlueTest every day!
October 08, 2016
The Peer Diabetes Mentoring Summit!
Our friend Daniele Hargenrader, BSNS, CHC (aka the “Diabetes Dominator”), has created an exciting new online program that we hope many of our community consider participating in!
The Peer Diabetes Mentoring Summit™ is the first comprehensive online peer to peer mentoring and diabetes empowerment summit open to people with diabetes, those who love and care for us, and medical professionals world-wide. This FREE online event will teach those who live with diabetes (whether you’re newly diagnosed or a diabetes veteran) how to succeed in life emotionally, physically, spiritually, socially and mentally (the areas which are almost completely ignored in standard medical practice) as it relates to living with diabetes.
The Peer Diabetes Mentoring Summit will help you:
By merging education, empowerment and community into seven fun, life-changing days from the comfort of the attendee’s own home or smartphone, this event is reinventing the way PWD are prepared for their day to day lives managing a chronic disease. The Peer Diabetes Mentoring Summit ™ is the first program in the country to offer its participants free continuing education and support after the summit comes to a close via online training, webinars and group coaching. There is no excuse for missing this amazing opportunity!
- Learn how to succeed in life with diabetes emotionally, physically, spiritually, and mentally through the life-changing power of peer mentoring.
- Understand how to build life-long friendships and accountability partners, gain the support of medical professionals & coaches, and create and empowering, dependable network of empathetic peers who truly “get it” when it comes to living with diabetes.
- Learn how to navigate the intense emotions and feeling of isolation that often comes with feeling alone in our lives with diabetes.
- Understand how to massively increase self-efficacy and the internal desire to participate in the often tedious day to day, hour to hour practices that it takes for PWD (people with diabetes) to live happy and healthy lives!
Remember, registration is FREE!
August 18, 2016
Integrated Diabetes Services
Founded in 1995 by award-winning certified diabetes educator Gary Scheiner MS, CDE, Integrated Diabetes Services LLC is dedicated to helping people navigate the complexities of living with and managing insulin-dependent diabetes. Integrated Diabetes Services fills the void that exists in the current healthcare system with client-friendly accessibility, cutting-edge technologies, and skilled experts with a true passion for their work. All services are available both in-person at their Philadelphia based office or remotely (via phone, email, private chat or video). All of the clinicians at Integrated Diabetes Services have both personal and professional experience with diabetes. Not only do they have a superior understanding of diabetes management, they truly understand what it’s like to have unexplained highs and lows. They can empathize with the physical & emotional toll that living with diabetes can take. If you’re having difficulty finding a diabetes provider in your area that can offer you this same level of expertise and empathy we highly recommend looking into Integrated Diabetes Services! Their services are available on a fee-for-service basis, with retainer packages for those requiring more intensive intervention and follow-up. Convenient office hours and flexible payment options are available. For office hours, directions and package information please visit their make an appointment page.
August 08, 2016
Women And Diabetes: 10 Relevant Health Topics for Women Living with Diabetes
The topics in this paper are specific to women living with diabetes and range from prevention, management, interventions and disparities. Some of the topics further relate to different hormonal milestones during a woman’s lifespan. We Are Diabetes Partner Susan Weiner MS, RDN, CDE, CDN helped contribute to this project too! We love seeing so much collaboration between our partnering organizations!