News and Updates
July 10, 2016
The Faces of Diabetes
The Faces of Diabetes is a nonprofit dedicated to changing the way people see diabetes. Founded by Edward Fieder, the website and associated social media channels feature user-submitted images along with short stories about their lives with diabetes.
The Faces of Diabetes originated as an idea – a photo book filled with portraits and quotes from other people living with diabetes, that would help newly diagnosed diabetics and those dealing with diabetes burnout realize that diabetes is NOT a death sentence.
Edward’s commitment to create a sense of community for people living with type one diabetes hits close to home: "When I was young I didn't take my diagnosis very well and was scared about the future. I grew up not having many friends with diabetes and at times, that made me feel different and alone. As I got older I met others with diabetes and the loneliness and fear vanished. I now feel empowered by this illness and without it I don't know where I would be in my life. Despite all the garbage I've had to deal with I've never really let it keep me down. I don't want other people that live with diabetes to ever feel down either. YOU AREN'T ALONE. There are plenty of people with diabetes that share the same struggles and go through the same battles that you do everyday!"
While the book (which is almost complete and will be available soon for purchase) is indeed the backbone of the mission of The Faces of Diabetes, it’s grown into much more than that. A strong community has developed that connects every type one diabetic who shares their story with Edward. Check out The Faces of Diabetes Facebook page and their YouTube channel to see what we mean!
June 25, 2016
We’re Proud to Announce Our Newest Partner: Susan Weiner, MS, RDN, CDE, CDN!
Susan Weiner is an award-winning Registered Dietitian-Nutritionist, Certified Diabetes Educator and published author. Her Masters Degree in Applied Physiology and Nutrition from Columbia University in New York has afforded her the opportunity to practice as a nutritionist and exercise physiologist.
Owner of Susan Weiner Nutrition, PLLC, located in New York. Susan was named the 2015 AADE Diabetes Educator of the Year and is the recipient of the 2016 Dare to Dream award from the Diabetes Research Institute. She has also been honored with the 2014 Distinguished Alumna Award from SUNY Oneonta and received the 2015 LifeChanger Award from Health Monitor.
Susan is a key educational advisor for Marjorie’s Fund, a type 1 diabetes global diabetes initiative. She is on the advisory board for DiabetesSisters and for “THE BETES.” She also serves on the board of directors of Project Real. Most importantly (to us) Susan is passionate about helping people with diabetes live the best, healthiest lives possible. Her intelligence, sincerity and dedication is truly admired and we are thrilled to add her as one of our Partners! Check out Susan’s most recent project Healthy Bytes for useful and insightful blogs on living with diabetes.
May 20, 2016
Have you checked out Beyond Type 1?
We’re big fans of this new organization! Founded in February 2015, Beyond Type 1 creates and funds a portfolio of programs, technologies and innovations that those living with Type 1 diabetes need to manage, live and thrive. Their goal is to highlight the brilliance of those fighting this disease every day while always working toward ensuring a cure is on its way. The Beyond Type 1 Instagram campaign “Living Beyond,” showcases the age, range and variance of those living their best life with T1D from across the globe, and their website provides education, support, and some really great recipes! They also have a stunning collaborative video project that every person living with T1D should watch!
“We aim to be provocative, inclusive and disruptive: putting a face on this disease, clearing up misunderstandings about who is affected by T1D and eradicating the stigma that comes from living with a chronic disease. We recognize there is a different narrative to be told: that of a strong empowered community living a powerful life beyond the diagnosis.”
May 09, 2016
Meet Integrative Health Coach (and fellow T1D) Kimberly Goodson!
Kimberly Goodson is an Integrative Health Coach trained through Duke Integrative Medicine’s Integrative Health Coaching Professional Training program in 2015. Located in Durham, North Carolina, her specialty lies in working with people impacted by Type 1 Diabetes. In addition to coaching, she is actively reaching the community through volunteering, speaking, blogging, and facilitating MeetUps for Adults with Type 1 and 1.5 Diabetes.
As a woman with Type 1 Diabetes and Hypothyroidism, the word “balance” carries a lot of physical and emotional meaning for her. Life with these conditions requires diligent management of blood sugars, diet, exercise, and so much more. She found her passion when she discovered the real value of counsel and encouragement from someone who thoroughly understood her situation. She held tight to that passion and allowed it to project her forward.
Now as a health coach, she empowers each client to discover, achieve, and sustain his or her optimal health goals. Just as Ginkgo trees represent lasting peace, hope, vitality and love, her coaching techniques equip her clients to create long-lasting habits that establish unique, vibrant, full, and balanced lives. Kimberly will listen, and challenge her clients to dig down deep to their roots. She will nurture with accountability to support growth and help her clients reach their personal goals!
May 02, 2016
We Are Diabetes National Provider Network: Karen Tenreiro Psy.D serving New York, NY!
For the past 17 years, Dr. Karen Tenreiro has worked with individuals who come to her feeling stuck and scared, or angry and misunderstood, as well as with other professionals interested in the mind-body connection. In 2000, she started her dissertation focusing on a personal interest of hers: eating disorders and type 1 diabetics. The following year, she interned at an inpatient eating disorder unit in a Philadelphia hospital. Since then, she’s immersed herself in this specialty.
Since 2002, she has had experience working with diabetics who struggle with all types of eating disorders. Because food digestion is at the heart of this medical diagnosis, body and food issues can easily arise. Karen’s unique understanding of the treatment and physical experiences of diabetes help her communicate with doctors and diabetes educators, as well as nutritionists.
Recently, she has taken an interest in talking to parents and educators about eating disorder prevention. Rather than focusing on food and weight, Karen feels that prevention starts with understanding children's development and the formation of their core sense of self. Eating disorders are simply a way that people attempt to cope with uncomfortable feelings when they know of no other way to do so. She is currently designing an informative and dynamic talk, centered around what parents and educators can do to assist their children and students.
Karen works on a sliding scale and is an out-of-network provider.
March 30, 2016
The following article was written by ConnecT1D Board Member Cassidy Kintner MS, LMFTA, MDFT. Cassidy shares her personal experience and excitement about the upcoming ConnecT1D Retreat this summer!
"I was going to a dinner party the other night and I was not looking forward to it. There was traffic on the way over which is by no means my favorite, but that aside, I had been looking forward to this particular evening all week. The people my partner and I were meeting up with were his childhood friends, and I enjoyed spending time with them. This sudden attitude shift can be an indicator that my diabetes (or T1D) is doing something funky, so when we arrived at their home, I checked my blood sugar. It was 476. (For those of you who are not familiar with T1D, a common target range for blood sugar is between 80-180). After a quick bolus (which is a way to administer insulin to cover blood sugar and/or food intake), my very supportive and patient partner asked if he could do anything to help. I shook my head. I needed a few minutes to collect myself, and I told him to go ahead inside.
I sat there, tears in my eyes, and felt the frustration and grief wash over me. The fact that I was going to have to go into a party and eat dinner wasn't helping. For many people with diabetes, we struggle with the necessity to vigilantly monitor what we eat and consume or not consume regardless of whether or not we are hungry. This internal struggle can breed an obsessive and critical relationship with food. There is this feeling of separation due to a distrust of our own bodies. In that moment, I was hungry but wanted to wait until my blood sugar came down, which seemed totally unfair.
So I asked myself what I really needed. The answer was simple but its effect was profound—I needed understanding. It’s easy for me to isolate in those moments when my diabetes messes with my mood, and as loving as my partner is, Ididn’t feel like explaining what I was going through. I got out my phone and pulled up a group text I’d started with two of my dearest friends who also happen to have diabetes. I said what I was feeling (an intense, seemingly irrational and almost crippling sense of irritation), how much I hated having diabetes in that moment, and do you know what? They got right in there with me. No one was trying to pull me out of my frustration—they simply sat it in with me, and it felt amazing. They responded with the perfect mix of commiseration, compassion, humor and unity, as only a fellow T1D can do. Five minutes later I got out of the car and went inside feeling more peaceful, less alone, and dare I say it, ready for a good time. My blood sugar was still high, but I felt grounded in the connection I had made with people who truly understood my struggle and said “we’re in this together”. Chronic illness can be incredibly difficult—both physically and emotionally, and sometimes we need someone to help us remember and strengthen who we are apart from our disease.
And even though I have my diabesties to turn to at times like this, I can always use a few more friends with T1D to lean on and be leaned on. That is why I am looking forward to ConnecT1D Retreat for adults and teens with T1D in Seattle June 25-26. ConnecT1D Retreat is open to our spouses/partners too with special gathering time just for them. Parents of teen/young adults with T1D and high school nurses have Saturday evening sessions.
Each time I attend an event like ConnecT1D Retreat where I am surrounded by people with T1D who understand me, I feel empowered to tackle whatever life and T1D has in store for me. And, best yet, I know I'll leave the retreat with 1 or 2 new diabuddies who will have my back long after the retreat is over."
ConnecT1D Retreat is a 1-2 day program for adults and teens with type 1 diabetes. It takes place in downtown Seattle on Saturday June 25 with an overnight option and day 2 for adults near Bainbridge Island on Sunday, June 26. ConnecT1D Retreat is not a fitness retreat, or a nutrition or insulin technology retreat. The purpose is to introduce attendees to a community that understands their unique challenges; it's about inspiring others and being inspired by people with T1D. For more information or to register, please visit connect1d.org.
March 29, 2016
Bolus and Barbells!
There’s an amazing new event for T1Ds in the works! Bolus and Barbells is about bringing together like minded individuals that share a common love of strength sports while dealing with diabetes. The first Bolus and Barbells event will take place on June 11th, 2016, in Leander, Texas. This new event series was started by Rodney Miller, a type 1 diabetic for over 28 years. Rodney is currently an admin for the Type 1 Diabetic Athletes Facebook group and competes in powerlifting and strongman competitions. Recently Rodney has started using strongman demonstrations as a way to portray type 1 diabetics in a positive light. We're big fans of this T1D Superman! Since beginning his journey to bring awareness to type 1 diabetes Rodney has been featured on KMID Channel 2 news deadlifting a car to raise money and awareness, and has spoken at HealthSouth Regional Hospital. He was part of the film Type 1 Day 1, has been featured on Beyond Type 1, and provided an educational booth at several local ADA events including a strongman demonstration at the 2015 ADA Step Out Walk in Midland, Texas. Rodney has been a guest on the Diabetes Power Show, and provides coaching and nutrition programs for non diabetics and diabetics alike.
For more information on Bolus and Barbells visit www.bolusandbarbells.com
March 20, 2016
We Have A New Addition To Our Treatment Affiliate Program!
We Are Diabetes is thrilled to announce that we have partnered with Center for Change as our newest Treatment Affiliate!
Center for Change is committed to helping type one diabetic women and adolescent girls break free and fully recover from their eating disorders. This wonderful facility is fully capable in the treatment of ED-DMT1 and have years of experience with the type one diabetic population.
Center for Change believes that each patient deserves an opportunity to have a “fresh start” with the treatment of their diabetes. Safety, acceptance of their diabetes diagnosis, and independence are core principles that are addressed and monitored throughout their treatment stay. The care team for a T1D patient includes regular visits with an Endocrinologist, CDE, Psychiatrist, and Dietitian. All of the Center for Change staff is educated, trained and qualified to aid in the complete care and treatment of each individual patient who is suffering with the dual diagnosis of type one diabetes and an eating disorder.
February 27, 2016
I Choose Recovery Because....
Founder and Executive Director Asha Brown shares her thoughts about recovery for National Eating Disorder Awareness Week:
I choose recovery because my husband trusts me again.
I choose recovery because when I talk with a friend I can actually pay attention now to what they’re sharing with me, versus pretend that I’m listening while I mentally calculate carbs, calories and how much time I need to spend working out to “make up” for whatever I ate that day.
I choose recovery because If I can't find a way to love myself the way that I am and accept the body I was born in, then how can I ever expect others to love and accept me?
I choose recovery because I want to continue to experience authentic emotions and feelings outside of the emotions and feelings that surrounded my disordered relationship with food and my diabetes.
I choose recovery because my eating disorder never delivered what it promised. Instead of the promised “perfect life” and “perfect weight” that I spent a decade pursuing, I was broken, listless, unreliable and didn't really care if I lived or died.
I choose recovery because I know that bad days are unavoidable; whether I let go of the eating disorder or not. Life happens. There will be situations and sad things that I can't foresee or prevent because that’s part of life. Having a debilitating addiction to deal with on top of life’s inevitable curve-balls just makes these situations even more difficult to handle.
I choose recovery because I truly believe that I have a greater meaning on this planet beyond gaining and losing the same 20 pounds.
If you are currently struggling with your diabetes and an eating disorder please reach out to us for support. It’s time to start living that life you always imagined living.
February 22, 2016
National Eating Disorder Awareness Week!
This week is National Eating Disorder Awareness week and we're proud to partner again with NEDA during this important week! We encourage everyone to help us spread awareness by visiting the NEDAwareness website and checking out all the amazing resources they're created just for you!
We Are Diabetes offers one-on-one mentorship, friendship and support to any T1D who is struggling with an eating disorder, diabetes burnout, depression or anxiety related to managing their diabetes. If you are interested in receiving support from our team, please take a moment to fill out the Client Self- Assessment form found here. If you are a concerned parent, spouse, friend or family member interested in learning more about how our support services could help your loved one, please fill out our Client Assessment form for Parents, Spouses, Family and Friends.