September 22, 2014
The DOC; it's more than just diabetes blogs!
The DOC (Diabetes Online Community) is an essential tool for any individual living with T1D. Whether you simply want to read blogs written by others who "get it" or get more involved in Diabetes Advocacy, there is a multitude of resources available to get involved in this inspiring community. To get started we recommend visiting tudiabetes.org and starting your own profile to connect with other PWD (people with diabetes). We also recommend visiting diabetesadvocates.org: get familiar with the advocates (almost all of them are bloggers with wonderful insight to living with diabetes) and get familiar with the issues that the Diabetes Advocates are fighting for! Have you ever checked out Christel Aprigliano's blog The Perfect D? Do it, you can thank us later! Have you visited Scott K. Johnson's blog recently? Or Kim Vlasnik's fantastic blog Texting My Pancreas? There are so many unique and inspiring diabetes blogs out there to discover!
Living with diabetes is hard, but finding support from others who live with diabetes, and getting active in the DOC is one of the best ways to remind yourself that you are not alone!
August 25, 2014
Diabulimia: A Personal Account
This article was originally posted on Insulin Nation on August 25th 2014 and was written by Meghan Tinkler. We want to extend our gratitude to Meghan for being brave enough to share her current struggles so openly and honestly!
I have been struggling with diabulimia since 2001. Diabulimia, to me, is a mental disorder that tricks your mind into thinking you are overweight from taking insulin, and that by skipping insulin or taking it in small amounts, the weight will simply fall off.
I canít tell you how many times I have had my condition dismissed as just a mental thing. Of course it is. Itís a mental thing that is really hard to ignore or cure. I was 15 years old when I figured out that taking less insulin meant I would lose weight. Iím now 28, and I still struggle.
Diabulimia terrifies me, but I havenít yet been able to stop. Iíve seen what it does to people with Type 1 diabetes first-hand. Iíve met women with gastric pacers, neurogenic bladders, and amputations. It scares me into stopping temporarily; Iíll have maybe 2 great days of faithful insulin administration, and then I will fall back into old habits.
My eating disorder reached its nadir with a broken continuous glucose monitor (CGM) and some bad insulin. Previously, I had been managing my diabetes with a Dexcom CGM and a Medtronic insulin pump. Somehow, I ended up with a spoiled vial of insulin, and I was constantly frustrated with the blood sugar graphs I was getting from my Dexcom. Not two weeks later, the Dexcom transmitter died. Just shut down. I had to purchase a new one, and I chose not to do it.
It was a conscious plan to stop taking care of myself. I was burnt out and fed up. I stopped checking my blood sugars, and I just wore the insulin pump for show. I didnít bolus for my meals or snacks. I would sometimes test my blood sugar out of curiosity, and laugh at the number that greeted me. Five hundreds, four hundreds.
My endocrinologist knew exactly what I was doing. She never judged me for what I do ó sheís well-versed with diabulimia and knows it is associated with mental illness and Type 1 diabetes. Over time she helped me form a plan to combat my eating disorder. The plan is simple Ė a low-carb diet with lots of healthy fat, proteins, and vegetables.
Itís been almost three months since we started the plan, and for the most part, Iím sticking with it. Iíll occasionally have days where I donít test my blood sugar, or I eat 50 or more grams of carbohydrates per day, but Iím taking my insulin more often and I now even exercise, thanks to having more energy.
Having my friends and family support me through this has been invaluable. Itís also more than I deserve for what I have put them through ó the constant lying and hiding. Blogging about my experience with Type 1 diabetes and diabulimia also has been a form of therapy for me. Iím happy to know that Iím not alone in this, that itís pretty common among girls and women with Type 1.
Every time I give in to diabulimia, it feels like Iím giving up. What I have come to find out is that falling down is just another valuable learning experience. As I write this entry, today is a good day. My blood sugars havenít gone above 130 mg/dL. On days like this, I feel like I can do anything, and thatís reason enough for me to keep trying. And thatís what Iím going to do ó keep trying.
August 21, 2014
Common Health Problems When Recovering from Eating Disorders and Type 1 Diabetes
This article first appeared on Walden Behavioral Care's Blog and was written by WAD's Social Media Expert Amy Gabbert- Montag.
When I first started eating disorder treatment in 2008, I had an idea of what it would be like: I would go see a therapist for a month or so, they would tell me what was wrong with me, instruct me on how to fix it, and I would magically stop using eating disorder symptoms. I expected I would be done with treatment in a month or two.
Of course, that was not the case. In reality, eating disorder treatment is arduous, often lengthy, and full of ups and downs. In addition to seeing a therapist to work on mental health issues, an important part of treatment is mending your physical health. When I look back, I wish I would have known what to expect physically during that time. While there are more resources now than there was when I entered treatment in 2008, there is still a lack of information about ED-DMT1 (eating disorder and diabetes metillus type 1) and how it differs from other eating disorders. Many of the individuals I speak with who struggle with diabetes and an eating disorder have shared their distress when reintroducing insulin into their bodies, and how they wish theyíd have known that some of the changes they experienced were to be expected.
Here are some common issues that people in treatment with ED-DMT1 encounter:
1. Insulin edema
Perhaps one of the most difficult initial hurdles to overcome when in treatment with ED-DMT1 is insulin edema or water retention. Water usually collects in the lower extremities and sometimes your midsection. Due to the constant state of dehydration due to high blood sugars, the body may want to hold on to as much water as possible.Additionally, the extra water is needed to aid in cell repair and to regulate liver and kidney function. Edema may be uncomfortable and even be painful at times. If you are experiencing edema, there are some steps you can take to combat its effects: elevating your feet, wear compression socks, and, though it may sound counterproductive, drink plenty of water. Your doctor may also prescribe medication if the swelling is severe. Most importantly, continue with your insulin regime and meal plan.
Before I sought professional help, I would occasionally make an attempt to take insulin regularly. However, the edema I experienced was highly distressing and I would engage in eating disordered symptoms again in order to get rid of the excess water. Though symptom use is tempting in order to alleviatethe edema, doing so will only prolong the process of getting your body back to normal. After being in recovery for several years, I no longer have edema. The water weight that I initially put on dissipated. Remember, insulin edema is temporary.
2. Gastrointestinal distress
Reintroducing insulin is also associated with gastrointestinal problems. It is common for ED-DMT1 patients to experience a variety of gastric issues, including bloating, constipation, and diarrhea. Without a sufficient amount of insulin in the body, the digestive system is unable to move food through, and this is why these symptoms happen. Gastroparesis is another gastric issue that can arise. Gastroparesis is a diabetes complication that occurs when the nerves that control the emptying of the stomach into the intestines get damaged. The result is that food stays in your stomach for an extended period of time, which often results in gastrointestinal problems.
Even with gastroparesis, there are medications and tweaks to oneís diet to reduce these symptoms. Be sure to talk to your doctor or dietitian to discuss these options. With time, insulin, and nutrition, and perhaps some medication, these symptoms do get better!
3. ďSymptomatic Relative HypoglycemiaĒ
Our bodies are incredible at adapting to various environments and states of being (WC). When a person regularly omits insulin, their body becomes accustomed to high blood sugars. Thus, the state of hyperglycemia feels ďnormal.Ē When a person begins to administer insulin on a regular basis, it takes the body some time to get used to in-range blood sugars. Itís quite common for ED-DMT1 patients to feel low when their blood sugar is in their target range. Doctors and clinicians refer to this as symptomatic relative hypoglycemia (Critchley, 2014). Feeling like one is hypoglycemic is extremely uncomfortable and may deter a person from continuing to carefully monitor their blood sugars and take insulin. Providers have found that slowly lowering a patientís blood sugars is most effective, especially if the patient is used to being severely hyperglycemic on a regular basis (Critchley, 2014).
4. An increase in symptoms of diabetes complications
As most people with diabetes are aware, diabetes can wreak havoc on your entire body and cause a myriad of complications. When in treatment for ED-DMT1, it is not uncommon to find that, if you have developed complications, they tend to get worse before they get better. Complications do get better with consistent blood sugar management and nutrition. Iíve dealt with several complications, including peripheral neuropathy, retinopathy, and gastroparesis. Iíve been on various medications and undergone several procedures to combat these complications. Now, my eyes are stable, I no longer need medication to combat the nerve pain in my feet, and my gastroparesis only causes flare-ups ever now and again. Our bodies have an amazing ability to heal.
I know firsthand how frustrating and uncomfortable it is to sit through these changes and allow your body to normalize and abstain from eating disorder symptoms. It can feel like your body will never get back to normal. I can assure you that, with time and consistent insulin injections and nutrition, your body will normalize. Eating disorder treatment has many ups and downs, and itís ok for feel frustrated, angry, or sad about these changes. It is crucial to surround yourself with a supportive treatment team and loved ones. This time of fluctuation and change can be extremely difficult to handle by oneself.
Keep in mind that there is always hope. I often felt so hopeless at times I didnít think I could go on. Somehow, I found that shred of hope necessary to keep going. I encourage you to find that for yourself.
If you need extra support or resources about ED-DMT1, do not hesitate to contact We Are Diabetes.
Critchley, S., Meier, M., & Taylor, D. (2014, March 1). Eating Disorders and Type 1 Diabetes: Practical Approaches to Treatment. Practical Diabetology, 18-24.
Parkin, C. Inpatient Management of Eating Disorders in Type 1 Diabetes. Diabetes Spectrum, 22, 153- 158.
Parkin, C. Outpatient Management of Eating Disorders in Type 1 Diabetes. Diabetes Spectrum, 22, 147-152.
August 11, 2014
Support Networks for The T1D Athlete!
We all know that being active is good for our emotional and physical health, but sometimes it can feel like more trouble than it's worth! Every T1D can relate to the frustration of trying to balance their bgs during exercise and no two formulas for figuring out how to stabilize blood sugar levels for the duration of a cardio or a strength training session will be the same. There are so many variables at stake for a T1D before they start any exercise activity and it can be frustrating when our exercise session is interrupted by frequent lows or even unexplained highs! Luckily our friend Ginger Vieira recently wrote a fantastic article about some excellent resources for the T1 Athlete! Any active T1D (or T1D who WANTS to start adding in more daily activity) should check this out!
August 06, 2014
Food, Guilt and Diabetes
Diabetes Advocate, Columnist and Blogger Christel Marchand Aprigliano shares insight and reflection on a relationship that all T1Ds must face once in a while: Food, Guilt and Diabetes.
July 28, 2014
Check out what Amy Gabbert-Montag is writing about!
Our Social Media Expert, Amy Gabbert-Montag, has been writing some great articles for Walden Behavioral Care's Blog and we wanted to make sure that you had a chance to read them!
Amy's first article addresses the term "Diabulimia"
and the pros and cons of this media coined phrase. Her second article discusses the Difference Between ED-DMT1 And Diabetes Burnout
. These are both incrediblely important topics that have rarely been addressed until now! Stay tuned for more of Amy's work to come...
July 22, 2014
15 Things Not to Say to Someone Living With a Chronic Illness
Sometimes our friends or family members may say something that just "rubs us the wrong way" in regards to what we deal with on a day to day basis with our diabetes. They may not even realize that their "helpful" comments can do more harm than good. We recently stumbled upon this helpful article that offers some compassionate advice to the loved ones of someone living with a chronic illness.
July 07, 2014
Many of our community (T1Ds who are struggling with an eating disorder and T1Ds in recovery from an eating disorder) have grappled with bingeing. It can be a difficult thing to discuss and a difficult obstacle to overcome in the recovery process. There are many resources that are available to someone who may be struggling with this component of an eating disorder and the staff at We Are Diabetes are always here to help guide, support and encourage.
One particular resource that can be helpful to someone who is struggling with bingeing is this helpful Anti- Binge strategy list
developed by our friends at The Joy Project
. Print this out and stick it on your fridge!
July 01, 2014
We Are Diabetes National Provider Network: Michelle Lewis LCSW of Salt Lake Weight Counseling
Michelle has been working with eating disorders and addictions. She has a Bachelorís degree in Psychology from Weber State University and a Masterís degree in Social Work from the University of Utah. She specializes in treating Binge Eating Disorder, emotional eating, food addiction and PTSD. Michelle provides a safe, caring, and comfortable environment to promote healing. Her approach is nonjudgmental and her goal is to help you feel at ease. She helps you to feel understood, respected and hopeful. She is passionate and enthusiastic about her work to help others achieve wellness. She works with dietitians, fitness professionals and medical professionals to provide holistic care for wellness.
Michelle has been a contributing expert for GoodTherapy.org writing articles about weight loss, motivation and self care. She has written a chapter in a book titled Breaking Free: Overcoming Self-Sabotage and has had several television interviews on stress management, emotional eating and Binge Eating Disorder. Individuals who live in or near the Salt Lake City area can contact Michelle here to learn more about her services!
June 20, 2014
If I Kiss You, Will I Get Diabetes?
Quinn's new book, "If I Kiss You, Will I Get Diabetes?" is now available for purchase! It's her personal story of living with type 1 diabetes. Nystrom's journey chronicles her real life experiences of figuring out how to live a "normal" life with a chronic disease. Quinn's wish with this book is, "I'm hoping this book will provide courage and faith for your journey as it has my own."
For the past 17 years, Quinn Nystrom has shared her story of living with type-1 diabetes to audiences across the country. As the National Youth Advocate for the American Diabetes Association (ADA) she spent a year traveling across the country to diabetes camps, convention halls, the White House, corporate offices and the United States Congress. Her message was simple: We must find a cure for diabetes and provide support and care for the millions of people living with the disease.
May 12, 2014
It's the 2nd Annual Diabetes Hope Conference!
This virtual conference is taking place May 20th at 11 a.m. CT. Panelists from the medical, blogger and diabetes communities will be having a frank discussion about diabetes. dLife columnists Dr. Jen Nash and Scott Johnson will be part of the discussion! Click here to register today!
April 30, 2014
Treating (and accepting) low BGs.
The following is a message from We Are Diabetes Founder and Executive Director, Asha Brown.
During the first year of my recovery from diabulimia I had to accept that having an occasional low blood sugar is just part of living with T1D. Accepting that low BGs happen may sound easy, but I spent years as a teenager fearing the horrible feeling of a hypoglycemic episode and purposefully kept my BGs elevated to avoid ever having one. Eventually this behavior manifested in to a full-blown eating disorder. I now accept that avoiding lows can't always be helped but there are things that I can do to prevent a hypoglycemic episode from ruining my entire day or having a low BG become a full-blown binge and threaten my strong recovery.
As my recovery from insulin omission and binge-eating grew stronger I slowly developed a "low BG action plan" that I still follow every time I have a low. Always ensuring that I have these items and having this action plan has helped me immensely in dealing with the anxiety and discomfort that hypoglycemia creates. Please note: this is the plan that works for ME and MY body and I encourage any T1D who is thinking of developing their own low BG plan to consider what factors and behaviors work best for them. [full article]
April 22, 2014
We Are Diabetes is excited to announce a new addition to the website! Our new Academic Research section offers links to all the major studies done to date on the subject of diabetics with eating disorders. We Are Diabetes strives to offer information not only for those who are struggling, but for concerned parents and healthcare providers. The Academic Research section offers validity to this growing concern among the diabetic population, and as more research is done in the field, our library of articles will continue to expand.
April 14, 2014
New treatment resource: Canopy Cove!
We Are Diabetes is thrilled to highlight another facility in our recovery section!
Canopy Cove is located in Tallahassee, Florida and has over 25 years of experience in treating diabetics with eating disorders. Located on 55 peaceful acres with nine horses on site (used for Equine Therapy each week), Canopy Cove offers three levels of care: Residential, Partial Hospitalization and Intensive Outpatient.
For more information please click here to visit our Recovery page!
April 7, 2014
Leann Harris and Delphi Diabetes Coaching
We Are Diabetes is very excited to share a new resource introduced to us by our good friend Ginger Vieira! Delphi Diabetes Coaching is a compassionate psychosocial coaching service for diabetics and their loved ones. The face behind this dynamic resource is fellow T1D, Leann Harris.
Leann is a Professional Coach who utilizes evidence-based functional and cognitive behavioral techniques to help her clients accept their diagnosis and overcome common fears (such as hypoglycemia) and/or obstacles to their diabetes care. She specializes in the newly diagnosed as well as those who are completely frustrated with their care. Leann shares on her website that diabetes panic attacks and burnout are her personal favorite issues to tackle!
"My mission is to create a supportive environment that works with the emotional and social aspects of diabetes care and integrate that into your day to day management of Diabetes."
Leann teaches her clients how to use stress management to overcome anxiety related to diabetes and diabetes complications and also addresses feelings of being overwhelmed and/or Diabetes Burnout. Learning to be resilient and flexible with this demanding chronic illness is not easy and itís comforting to know that services like Delphi Diabetes Coaching are available for any diabetic who needs some support!
March 31, 2014
There is no way to avoid the inevitable burnout periods we T1Ds go through once in a while. This demanding disease has a way of sucking out both our emotional and physical energy and sometimes it can all feel pointless. No one living with T1D should ever feel ashamed for going through a diabetes burnout period, it happens to everyone and no two individuals experience with diabetes burnout is going to be the same. We wanted to share a wonderful 4-part series written by Ginger Vieira on this important topic AND to announce the exciting news that Ginger's new book "Diabetes Burnout" will be available soon for purchase! To end on a lighter note, we thought we'd share an amusing little video we discovered on dlife: I hate high blood sugars! If you or anyone you know is going through a tough period of diabetes burnout please reach out to Erin or Asha. Our emails are on the contact section of this website!
March 17, 2014
Reminder: Don't give up!
We Are Diabetes is currently supporting a number of courageous T1Ds through their recovery journey and many of them are starting to experience the unavoidable challenges that happen during the recovery process. We thought it might be fitting to re-post an article that our Founder, Asha Brown, wrote last year on perseverance.
March 10, 2014
We recently stumbled upon a wonderful book called Mindful Eating by Jan Chozen Bays, MD. Mindful eating is an approach that involves bringing one's full attention to the process of eatingóto all the tastes, smells, thoughts and feelings that arise during a meal. This book can help you to identify your habits and patterns with food, tune into your body's own wisdom about what, when, and how much to eat and help you develop a more compassionate attitude toward your struggles with eating. Food and eating can mean a lot of different things to a T1D and this book offers kind and loving approaches to a daily factor in our diabetes management that cannot be avoided. Mindful eating is a perfect companion to another favorite book of ours: Emotional Eating with Diabetes by Ginger Vieira!
March 3, 2014
American Recall Center
Below is an announcement from Dr. Mario Trucillo of the American Recall Center, a brand new medical information site aimed at bringing consumers the most up-to-date FDA information in easy to understand, plain language terms:
For millions of people, a healthy and active lifestyle is possible because of prescription drugs. Thousands of Americans have regained mobility and personal freedom through implanted joints and other prosthetics. As advancements in medical science continue and healthcare professionals take on more and more patients, it can be difficult for many patients to get the attention they need in order to fully understand all available treatment options.
The American Recall Center was established to keep all this information at the fingertips of patients. We know that treatment information can be difficult to find, so we've organized it conveniently here in a single spot. Additionally, we understand that oftentimes patients cannot understand the lingo used by health professionals in describing treatment options. We've taken the time to demystify medical terminology and explain common procedures, drug interactions and more. Our goal is to empower patients by providing facts in an easy-to-use database filled with plain language.
One of our top priorities at the American Recall Center is helping patients stay up to date and informed about alerts from the FDA with Patient Safety Alerts. Registered individuals can opt to receive patient safety alerts, real-time, customizable notifications that come directly to your email. Once youíve registered with us, all you need to do is select the medical devices and prescription drugs that affect you from our online database. As long as you keep this list up to date, you will always be in the know concerning the most recent FDA alerts regarding your personal health and treatment plans. When a pertinent FDA announcement is issued, youíll be immediately updated by email. In this way, you can be sure that you always have the most current information about issues that affect your health.
February 18, 2014
Getting creative can be very helpful in the process of recovery from any addiction. The creative arts can provide time to get in touch with one's inner-self and can provide a form of expression for feelings that cannot be easily identified or put into words. Taking some time to focus on our recovery in a creative way allows us to relax without relying on the negative behaviors that we are trying to avoid. We Are Diabetes now has a Recovery Projects section on our Resources page that offers a list of ideas, projects and questions to help you get started in getting in touch with your recovery on a creative level!
February 12, 2014
National Eating Disorder Awareness Week!
National Eating Disorder Awareness Week (or Nedawareness) is February 23rd - March 1st, 2014! Check out what YOU can do to help spread awareness this year! Throughout the month of February we will be sharing recovery themed resources in honor of this important campaign!
Walden Behavioral Care has a wonderful article about the minute to minute challenges we can sometimes face in recovery.
Any type 1 diabetic who has struggled with feelings about food and emotional eating should check out Ginger Vieira's book: Emotional Eating With Diabetes. Ginger's personal coaching website, Living in Progress, also has tons of great articles and videos on staying healthy, emotionally and physcially, with T1D!
Our friend Cynthia Zuber at Diabetes Light shared this wonderful article with us and we want to make sure any T1D who has ever felt discouraged about their diabetes reads it!
Tune in next week for more recovery inspired resources and dont forget to mark National Eating Disorder Awareness week (February 23rd - March 1st) on your calendar!
February 3, 2014
Acceptance in Recovery
Today's guest post is by Amy Cox. Amy has struggled with Diabulimia for four years. Her courage and commitment to finding freedom from her eating disorder makes her a huge hero in our eyes! We Are Diabetes is proud to share some of Amy's recovery journey.
I've been in recovery from diabulimia twice, now. That's not how it's supposed to work- or so I thought. Recovery is meant to be final! A done deal- so long, eating disorder- hello, new me! While that may be possible for some, for me, recovery has been a long process with lots of stumbles and falls along the way.
I began the hard process of recovery over two years ago with two and a half months of inpatient treatment at Melrose Center, but six months after I was discharged, I relapsed. In retrospect, I realize that the relapse didn't just hit me on the head like a giant wielding a hammer- I never fully accepted what it would take for me to have a genuine recovery. I made deals with myself: "I'll stay in recovery as long as I stay below X weight. I'll stay in recovery as long as I can exercise several hours a day and try to keep some semblance of my pre-recovery body. I'll stay in recovery as long as nothing happens that makes me feel I'll need to use my eating disorder to cope." [full article]
January 29, 2014
Press Release: Three opportunities to attend a very special conference in 2014: Diabetes Sisters Weekend For Women!
The 2014 Weekend for Women Conference Will Convene Women of All Ages with All Types of Diabetes, Policy Makers, Healthcare Professionals, Business Leaders, Investors and Advocates to Discuss Key Issues Facing Women with Diabetes Today.
WASHINGTON, DC (January 27, 2014) -- Organizers expect hundreds of women with diabetes from 25 different states to ascend upon Washington, DC for the three-day power-packed Weekend for Women Conference scheduled for Friday, April 25- Sunday, April 27, 2014 at Embassy Suites Old Town- Alexandria. This will be the seventh Weekend for Women Conference hosted by DiabetesSisters and the first time it has convened in Washington, DC area.
As the only conference of its kind worldwide for women with diabetes, the event offers three days full of opportunities for women of all ages with all types of diabetes from all walks of life to gain the tools, strategies, resources, and connections needed to accelerate their success in every area of diabetes management. Participants come to learn about the latest diabetes products, build their support networks and attend education sessions conducted by diabetes experts and well-known diabetes advocates. Diabetes Technology Executive, Claudia Graham, MPH, PhD, will deliver the keynote address and share lessons learned from her 40+ years of living with diabetes. [full article]
January 27, 2014
Eating Disorders Program at Brandywine Hospital
In the summer of 2010, Brandywine Hospital made caring for people struggling with eating disorders a priority by opening the Eating Disorders Program at Brandywine Hospital. This was the first of its kind in Chester County and in the region, and among very few in the country to address both the psychological and medical aspects of these disorders. Since its debut, the Eating Disorders Program has drawn over 1,000 patients from Pennsylvania and across the country. Brandywine accepts both male and female patients ages 13 and older. They have a specialised treatment track for diabetics that you can read more about here.
The program is in network with most insurance providers, some Medicaid programs and Medicare. Program staff work closely with participants, their families and insurers so that the extent of coverage is understood in advance of admission. Most insurance plans cover the major portion of costs.
January 22, 2014
New recovery resource: Center for Change!
We Are Diabetes is excited to add Center for Change to our Recovery section!
Center for Change provides a caring and nurturing environment where women can heal under the constant supervision of a large staff of seasoned medical, psychological and nutritional experts. These individuals have been carefully selected because of their expertise in treating both the outward symptoms and underlying causes of eating disorders.
Center for Change's message that "hope is real" is woven through the entire treatment experience. Those who receive treatment at Center for Change often comment that the Center has "given them back their life" and restored feelings of freedom that they haven't felt for a very long time. Read more about the specific treatment track Center for Change offers for T1D's in our Recovery section!
January 20, 2014
New recovery resource!
We are happy to share our newest addition to our special list of highly qualified facilities across the United States that have the education and capability to treat type 1 diabetics who suffer from an eating disorder!
A licensed, Joint Commission-accredited behavioral hospital, Eating Recovery Center was founded by a team of leading experts whose goal was to fuse evidence-based findings and innovation to create a center of excellence for the treatment of eating disorders. Eating Recovery Center offers the full spectrum of eating disorders treatment services for female and male adults, adolescents and children, including Inpatient, Residential, Partial Hospitalization and Outpatient programs.
When it comes to lasting recovery for you, your loved one or your patient, the expertise of the treatment team is of critical importance. Eating Recovery Center brings together a team of compassionate experts with robust experience in assessment of and intervention for eating disorders that recognize that the true challenge to sustainable recovery occurs outside the treatment environment and following discharge. As a result, Eating Recovery Center's treatment philosophy is rooted in not only individualized assessment and clinical intervention for eating disorders, but also aftercare planning. The multidisciplinary treatment team collaborates with patients, families and outpatient professionals to develop a post-discharge plan of care that addresses each patientís distinctive medical, psychological and situational challenges to protect their recovery.
In addition to its comprehensive, Denver-based treatment programs offering the full spectrum of eating disorders care, Eating Recovery Center provides centers of excellence for the treatment of eating disorders across the country. Sacramento-based Eating Recovery Center of California offers Partial Hospitalization, Intensive Outpatient and Outpatient Services, as well as Outpatient Services in Fresno, and The Moore Center offers Partial Hospitalization, Intensive Outpatient and Step-Down Services in Bellevue, Washington.
January 15, 2014
"Good Like This" - by Peter Arpesella
It isn't often that you come across a lead character in a novel who has T1D. It's even more uncommon to come across a book that offers an honest and accurate portrayal of the physical and emotional strain that living with a chronic illness can create for a T1D. But we found one!
Actor, writer and fellow Type 1 diabetic Peter Arpesella recently wrote a book called Good Like This which offers the reader an opportunity to experience the daily life of a T1D who is burned out on his chronic illness. The story explores his life as a husband, a father, a person living with T1D and many other exciting plot points that we won't give away!
Peter Arpesella is an actor and award winning writer, originally from Rimini, Italy. His family owned the historical Grand Hotel, where family friend, Federico Fellini, set his award winning "Amarcord". When he discovered that storytelling is a lot more fun than investment banking, Peter moved to the States to work as an actor and writer. Peter's voice can be heard in the English version of the Oscar winning film "Life Is Beautiful," and in Dreamworks Animation "Madagascar 3," among others. He can be seen in the box office comedy hit "This Like A Man" and on the award winning TV show "Mad Men."
You can learn more about Peter at peterarpesella.com.
January 13, 2014
Helpful links for the new year!
Even if you are not making any New Year resolutions, January can be a time where we contemplate the new year ahead of us and examine some of our habits. Here are two great articles that offer advice on sticking with new healthy habits and staying positive!
- Six Questions To Make New Habits Stick
- Silencing the Negative Inner Voice
December 17, 2013
Welcoming Kelly Walker RD, CDN as a WAD Partner.
We Are Diabetes is proud to announce our newest addition to our WAD Partner Program: Kelly Walker RD, CDN is a very special resource for us as she is a type 1 diabetic herself! Her experience in nutrition and working in an eating disorder treatment facility has given Kelly valuable insight to many of the issues that type 1 diabetics who suffer from eating disorders may struggle with. Her experience in working with those who suffer from diabulimia, as well as her personal experience with managing type 1 diabetes makes Kelly Walker a highly valuable health care provider within the diabetes community! We asked Kelly to share a little more about her life with T1D and her experience in working with diabetics who struggle with an eating disorder and this is what she has to say:
"I became a dietitian due to my interest in the way that food has the ability to affect and heal the body -my body in particular. I have had type 1 diabetes for the last 27 years and I'm still fascinated with the challenge of trying to maintain an even keel. It's tough! There are so many factors that impact blood sugars and while growing up. I can honestly say I struggled with wanting to take a vacation from it all.
In high school, I became witness to a way of thinking that defied everything I'd been taught about diabetes when I attended diabetes camp. I heard kids talking about not taking their insulin, eating whatever they wanted, and still being able to lose weight. I have to admit, at the time, the idea sounded appealing. Thankfully, I was able to put it out of my mind and focus on the things I enjoyed. Singing, art, psychology, and the science behind nutrition monopolized my thoughts throughout my schooling. My desire to understand the the body and to be able to teach someone an effective and compassionate way to care for themselves became my goal.
It wasn't until I began my career working at a treatment center that specialized in eating disorders that all the puzzle pieces began to fit together. As I learned more about maladaptive coping mechanisms, anxiety, OCD, self validation by numbers and body image I was able to understand more about why this type of eating disorder develops with type 1 diabetes. I have been fortunate enough to work with multiple people struggling with diabulimia and feel privileged that I can relate on such a personal and vulnerable level with my clients.
I recently moved to New York City and am working as a dietitian for a non-profit organization where my work with eating disorders and diabetes management has continued. I also have a small outpatient private practice that I started in February 2012. I partnered with WAD because I believe strongly in the message they deliver, the purpose they serve, and the education and resources they provide. I am thrilled to have been asked to be part of such a wonderfully experienced and valuable organization."
December 9, 2013
We Are Diabetes National Provider Network: Fran Weiss LCSW-R, BCD, DCSW, DPNAP, CGP Psychotherapist, serving the New York City area.
Fran Weiss offers individual, couples and group therapy at her private practice located in Manhattan, NY. She treats anxiety, depression, trauma, body image, disordered eating, and other emotional and interpersonal issues. Fran has also worked with many T1Ds!
Fran is known for her pioneering work in the psychodynamic causes of disordered eating, and her work in putting together interdisciplinary teams to treat patients with mind/body problems. She has been the Senior Psychotherapy Consultant to the New York Obesity Research Center, St. Luke's Roosevelt Hospital Center since 1979 and serves as Associate Clinical Professor at Icahn School of Medicine at Mount Sinai (FKA Mount Sinai School of Medicine) NYC. Fran is also the book reviewer in eating disorders for the American Journal of Psychotherapy and has a continuous seminar series on PsyBC.
Traditionally trained in psychodynamic and psychoanalytic talk therapy, Fran has investigated, studied, and integrated when appropriate, many forms of therapeutic intervention into her practice. With over 30 years of experience in Psychotherapy, Fran Weiss has developed a large toolbox of skills from which to draw. We admire Fran's own thoughts on choosing a therapist and the role of therapy in someone's life:
"Choosing a therapist is serious business. Credentials are important. These I have. However, it is the fit that counts. The work in therapy is co-created by both the therapist and the individual. I believe that change can happen. It takes time and effort on both parts, and partnering with someone who "gets it" and helps you move to where you want to go."
"Optimally, therapy is a growth experience. Life can be transformed into something powerful and authentic. Successful treatment results in you moving on with your life, having gained a new ability to interact and connect with people in ways that work, makes sense to you, and that you can be proud of. Living your life fully and richly."
Fran's website even has a special section for diabetics who may struggling emotionally with their chronic illness called Diabetes and You. We wish that we could clone Fran Weiss and make her available to every diabetic that we know!
December 2, 2013
Integrated Diabetes Services
All T1Ds struggle with finding Endocrinologists and CDEs (Certified Diabetes Educators) who actually GET IT! It can be tough to try to explain all the factors that go in to living with T1D and it can be tougher still when trying to explain them to someone who tells you that they are a "diabetes expert" when they have never lived a single day as a type 1 diabetic! That's why we want every single T1D to know about Integrated Diabetes Services!
The entire staff at Integrated Diabetes Services all have type 1 diabetes. Yes, that's right, all of them! This special team of CDEs (lead by Gary Scheiner - AADE's 2014 Diabetes Educator of the year) focuses on improving blood sugar control, teaching advanced self-management skills and working with you to reach your individual goals.
Our good friend Ginger Vieira recently wrote an article about this amazing team!
November 11, 2013
BDI's Diabetes TLC Program
The Behavioral Diabetes Institute offers a wealth of resources and information for type 1 diabetics. Their unique Diabetes TLC Program is one of our favorite! Diabetes TLC is a one-to-one connection program for adults with type 1 and type 2 diabetes. The program was co-founded and co-designed by Behavioral Diabetes Institute's psychology staff and a T1D volunteer. The program pairs clients with a TLC "teammate" who can best relate to their needs, based on age, gender, type of diabetes and current challenges. This would be a perfect resource for a T1D who may not be suffering from an eating disorder, but may feel alone or burdened with their diabetes and/or those who would like assistance improving their self management skills.
Click here for past news and updates.
Lurk away! But please know that when you are ready to talk to someone about what you're struggling with Erin, Amy and I are all here for you! You can contact me anytime at firstname.lastname@example.org.
I've been where ... (more)
|Hello just introducing myself. My name is Steve and I struggle with diabulimia I'm just learning about it now so mostly lurking. I'm glad i'm not the only one...
I love what you wrote and I totally love the vanilla gel as well. I am currently finishing up with nursing school so to answer your question, no I don't live alone technically......I moved in with my parents again but they travel... (more)
|Hey Erin -- just curious, since these posts are a bit older... are you living on your own now? How is that going for you?
I don't live alone, but I do keep forms of glucose all over the house, in my car, in every bag, etc. I've recently discov... (more)
|This is such great information and just encouragement that re-entry to normal social situation can be difficult to navigate during the recovery process. I love what you said about bringing your own contribution to any event to be sure you have som... (more)
Being a T1D does NOT limit what you can eat! All foods are totally OK in moderation as long as you take insulin for them :)
Living with this disease IS hard and we all have periods of sorrow and burnout, but those o... (more)
|Love this truth Asha!!! Thanks so much for putting it out there...so I can return back to it again and again as I'm on this recovery process. We all need to be reminded that freedom is possible.
|Thanks so much for posting this... always inspiring and encouraging to read others story/struggle/journey! Keep sharing please!
|I am Type 1 diabetic and getting really fustracted. Please tell me if there are any Type 1. How do you deal with this and how do you comfort yourself knowing that you cant eat this or that and you cant drink that. You cant live a normal life, Its ... (more)
|This virtual conference is taking place May 20th at 11 a.m. CT. Panelists from the medical, blogger and diabetes communities will be having a frank discussion about diabetes. dLife columnists Dr. Jen Nash and Scott Johnson will be part of the disc... (more)