We Are Diabetes is an organization primarily devoted to promoting support, education and awareness for type 1 diabetics who suffer from eating disorders. We are dedicated to providing guidance, hope and resources to those who may be struggling, as well as to their families and loved ones.

We Are Diabetes also advocates for living well and living strong with type 1 diabetes. The daily challenges of living with this disease, as well as the emotional and financial toll it takes, can oftentimes result in a sense of defeat or isolation. We help those who feel alone in their chronic illness find hope and courage to live healthy, happy lives!

Services offered by We Are Diabetes include:

  • Referrals to credible providers and treatment centers across the United States.
  • One-on-one mentorship and guidance through the recovery process.
  • Support for both the individual who is struggling as well as their family and loved ones.
  • Unique resources designed specifically for the ED-DMT1 population.
  • Monthly online support groups.

If you or someone you know is a type 1 diabetic who is struggling with an eating disorder and are seeking support, or if you have any other questions or concerns, please don't hesitate to reach out to us.

News and Updates

August 08, 2016

Women And Diabetes: 10 Relevant Health Topics for Women Living with Diabetes

We Are Diabetes Partner DiabetesSisters and the Society for Women’s Health Research (SWHR®) recently collaborated to raise awareness about diabetes in women, primarily with a focus to educate women living with diabetes, diabetes educators and healthcare providers on a variety of important topics identified by experts in the diabetes field. Their dedicated efforts resulted in the recently published "Women And Diabetes: 10 Relevant Health Topics for Women Living with Diabetes."

The topics in this paper are specific to women living with diabetes and range from prevention, management, interventions and disparities. Some of the topics further relate to different hormonal milestones during a woman’s lifespan. We Are Diabetes Partner Susan Weiner MS, RDN, CDE, CDN helped contribute to this project too! We love seeing so much collaboration between our partnering organizations!

July 31, 2016

What's In Your Bag? The Art of Staying Prepared When You Live With Diabetes.

Founder and Executive Director Asha Brown shares how she handles her diabetes on the go:

Every woman I've ever known has been on a perpetual hunt for the perfect handbag. Every Single One; and that includes me! But there's a wrinkle in my search because I'm a type 1 diabetic, and that means that all the stuff I need to carry every day is quadrupled by the necessities of managing my disease while being out in the world.

When I first took over managing my health in high school, I found that using a backpack was the most efficient carrier for everything I needed during the school day. Through trial and error, I learned that juice boxes are bulky, and they can get squished. Glucose tabs are OK (as long as you get the good flavors), but I found that glucose gels were the easiest and most effective low bg treatment to pack. I actually prefer to use gels or glucose tabs vs food to treat a low to avoid over-treating my low, or feeling “controlled” by my diabetes to eat when I’m not actually in the mood to eat! I’ve learned to view my lows as a medical condition that need to be treated properly, not as an excuse to eat junk that makes me feel even worse later on.

I also learned that I needed to carry some healthy snacks for those times I’m out and need something to tide me over until I can have a real meal. I’m gluten and dairy intolerant, so it can be a little tricky to find the right type of protein or snack bar that is safe for me to eat and that actually TASTES good! I go through phases of various protein and snack bars that I always stash in my backpack, but no matter what brand or flavor it is, I always make sure I have something with a good amount of protein if I’m looking for extra fuel, as well as an option with a few more carbs in case I’m dropping low and am in the mood for a healthy snack!

Having a functional case to store your testing supplies and your insulin (or extra pump supplies) is essential, but it's a lot more fun to have something that's functional and FUN! I'm a huge fan of Myabetic's diabetes bags and am currently the proud owner of their cheery colored Kamen caseBetween carrying around my low bg supplies, my Myabetic case, a variety of snacks PLUS all the other things a woman needs to have in her purse, a cute little Kate Spade tote just isn't gonna cut it! I’ve used a variety of backpacks since I embraced the fact that as a T1D who lives a busy life, I need extra supplies with me on a daily basis. So I treat myself to a new fun colored backpack every year and carry on!

When I need to put on my “CEO hat” for nonprofit related events, I have a few purses with a fairly good amount of space I can squeeze most of my essentials into, but I’m still on the hunt for the perfect bag that is large enough to carry the daily supplies I need and that also looks professional enough for me to have at a conference or speaking event and allows me to leave the backpack at home.

I'll probably always be on the lookout for both a day-to-day bag and a professional tote to help make my very full life just a little more T1D efficient, manageable and fashionable... hoping a backpack isn't the final solution!


July 27, 2016

"The Dangers of Diabulimia" Webinar Thursday July 28th!

Join We Are Diabetes Partner Susan Weiner, MS, RDN, CDE, CDN, for an educational overview of diabulimia this Thursday July 28th at 1pm EST. This Webinar is FREE and we highly recommend registering to save a spot! Susan will talk about how to spot the signs of this eating disorder, the seriousness of the disease and treatment options. One of our very own "graduated" Clients will also be sharing some of her story! 

July 10, 2016

The Faces of Diabetes

The Faces of Diabetes is a nonprofit dedicated to changing the way people see diabetes. Founded by Edward Fieder, the website and associated social media channels feature user-submitted images along with short stories about their lives with diabetes.

The Faces of Diabetes originated as an idea – a photo book filled with portraits and quotes from other people living with diabetes, that would help newly diagnosed diabetics and those dealing with diabetes burnout realize that diabetes is NOT a death sentence.

Edward’s commitment to create a sense of community for people living with type one diabetes hits close to home: "When I was young I didn't take my diagnosis very well and was scared about the future. I grew up not having many friends with diabetes and at times, that made me feel different and alone. As I got older I met others with diabetes and the loneliness and fear vanished. I now feel empowered by this illness and without it I don't know where I would be in my life. Despite all the garbage I've had to deal with I've never really let it keep me down. I don't want other people that live with diabetes to ever feel down either. YOU AREN'T ALONE. There are plenty of people with diabetes that share the same struggles and go through the same battles that you do everyday!"

While the book (which is almost complete and will be available soon for purchase) is indeed the backbone of the mission of The Faces of Diabetes, it’s grown into much more than that. A strong community has developed that connects every type one diabetic who shares their story with Edward. Check out The Faces of Diabetes Facebook page and their YouTube channel to see what we mean!

June 25, 2016

We’re Proud to Announce Our Newest Partner: Susan Weiner, MS, RDN, CDE, CDN!

Susan Weiner is an award-winning Registered Dietitian-Nutritionist, Certified Diabetes Educator and published author. Her Masters Degree in Applied Physiology and Nutrition from Columbia University in New York has afforded her the opportunity to practice as a nutritionist and exercise physiologist. 

Owner of Susan Weiner Nutrition, PLLC, located in New York. Susan was named the 2015 AADE Diabetes Educator of the Year and is the recipient of the 2016 Dare to Dream award from the Diabetes Research Institute. She has also been honored with the 2014 Distinguished Alumna Award from SUNY Oneonta and received the 2015 LifeChanger Award from Health Monitor. 

Susan’s column “Diabetes in Real Life” is a featured monthly column in Endocrine Today. She is also the co-author of "The Complete Diabetes Organizer: Your Guide to a Less Stressful and More Manageable Diabetes Life" and “Diabetes: 365 Tips for Living Well".  In addition, Susan served as the 2015-2016 editor for “On the Cutting Edge,” a peer reviewed publication for the Diabetes Care and Education group of the Academy of Nutrition and Dietetics. She is also a medical advisor for several high profile health websites, including Healthline.com.

Susan is a key educational advisor for Marjorie’s Fund, a type 1 diabetes global diabetes initiative. She is on the advisory board for DiabetesSisters and for “THE BETES.” She also serves on the board of directors of Project RealMost importantly (to us) Susan is passionate about helping people with diabetes live the best, healthiest lives possible. Her intelligence, sincerity and dedication is truly admired and we are thrilled to add her as one of our Partners!

Check out Susan’s most recent project Healthy Bytes for useful and insightful blogs on living with diabetes.

May 20, 2016

Have you checked out Beyond Type 1?

We’re big fans of this new organization! Founded in February 2015, Beyond Type 1 creates and funds a portfolio of programs, technologies and innovations that those living with Type 1 diabetes need to manage, live and thrive. Their goal is to highlight the brilliance of those fighting this disease every day while always working toward ensuring a cure is on its way.

The Beyond Type 1 Instagram campaign “Living Beyond,” showcases the age, range and variance of those living their best life with T1D from across the globe, and their website provides education, support, and some really great recipes! They also have a stunning collaborative video project that every person living with T1D should watch!

“We aim to be provocative, inclusive and disruptive: putting a face on this disease, clearing up misunderstandings about who is affected by T1D and eradicating the stigma that comes from living with a chronic disease. We recognize there is a different narrative to be told: that of a strong empowered community living a powerful life beyond the diagnosis.” 

May 09, 2016

Meet Integrative Health Coach (and fellow T1D) Kimberly Goodson!

Kimberly Goodson is an Integrative Health Coach trained through Duke Integrative Medicine’s Integrative Health Coaching Professional Training program in 2015. Located in Durham, North Carolina, her specialty lies in working with people impacted by Type 1 Diabetes. In addition to coaching, she is actively reaching the community through volunteering, speaking, blogging, and facilitating MeetUps for Adults with Type 1 and 1.5 Diabetes.

As a woman with Type 1 Diabetes and Hypothyroidism, the word “balance” carries a lot of physical and emotional meaning for her.  Life with these conditions requires diligent management of blood sugars, diet, exercise, and so much more.  She found her passion when she discovered the real value of counsel and encouragement from someone who thoroughly understood her situation.  She held tight to that passion and allowed it to project her forward.

Now as a health coach, she empowers each client to discover, achieve, and sustain his or her optimal health goals. Just as Ginkgo trees represent lasting peace, hope, vitality and love, her coaching techniques equip her clients to create long-lasting habits that establish unique, vibrant, full, and balanced lives. Kimberly will listen, and challenge her clients to dig down deep to their roots. She will nurture with accountability to support growth and help her clients reach their personal goals!

May 02, 2016

We Are Diabetes National Provider Network: Karen Tenreiro Psy.D serving New York, NY!

For the past 17 years, Dr. Karen Tenreiro has worked with individuals who come to her feeling stuck and scared, or angry and misunderstood, as well as with other professionals interested in the mind-body connection. In 2000, she started her dissertation focusing on a personal interest of hers: eating disorders and type 1 diabetics. The following year, she interned at an inpatient eating disorder unit in a Philadelphia hospital. Since then, she’s immersed herself in this specialty.
Since 2002, she has had experience working with diabetics who struggle with all types of eating disorders. Because food digestion is at the heart of this medical diagnosis, body and food issues can easily arise. Karen’s unique understanding of the treatment and physical experiences of diabetes help her communicate with doctors and diabetes educators, as well as nutritionists.
Recently, she has taken an interest in talking to parents and educators about eating disorder prevention. Rather than focusing on food and weight, Karen feels that prevention starts with understanding children's development and the formation of their core sense of self. Eating disorders are simply a way that people attempt to cope with uncomfortable feelings when they know of no other way to do so. She is currently designing an informative and dynamic talk, centered around what parents and educators can do to assist their children and students.  
Karen works on a sliding scale and is an out-of-network provider. 

March 30, 2016

ConnecT1D Retreat!

The following article was written by ConnecT1D Board Member Cassidy Kintner MS, LMFTA, MDFT. Cassidy shares her personal experience and excitement about the upcoming ConnecT1D Retreat this summer!

"I was going to a dinner party the other night and I was not looking forward to it. There was traffic on the way over which is by no means my favorite, but that aside, I had been looking forward to this particular evening all week. The people my partner and I were meeting up with were his childhood friends, and I enjoyed spending time with them. This sudden attitude shift can be an indicator that my diabetes (or T1D) is doing something funky, so when we arrived at their home, I checked my blood sugar. It was 476. (For those of you who are not familiar with T1D, a common target range for blood sugar is between 80-180). After a quick bolus (which is a way to administer insulin to cover blood sugar and/or food intake), my very supportive and patient partner asked if he could do anything to help. I shook my head. I needed a few minutes to collect myself, and I told him to go ahead inside. 

I sat there, tears in my eyes, and felt the frustration and grief wash over me. The fact that I was going to have to go into a party and eat dinner wasn't helping.  For many people with diabetes, we struggle with the necessity to vigilantly monitor what we eat and consume or not consume regardless of whether or not we are hungry.  This internal struggle can breed an obsessive and critical relationship with food. There is this feeling of separation due to a distrust of our own bodies. In that moment, I was hungry but wanted to wait until my blood sugar came down, which seemed totally unfair.

So I asked myself what I really needed. The answer was simple but its effect was profound—I needed understanding. It’s easy for me to isolate in those moments when my diabetes messes with my mood, and as loving as my partner is, Ididn’t feel like explaining what I was going through. I got out my phone and pulled up a group text I’d started with two of my dearest friends who also happen to have diabetes. I said what I was feeling (an intense, seemingly irrational and almost crippling sense of irritation), how much I hated having diabetes in that moment, and do you know what? They got right in there with me. No one was trying to pull me out of my frustration—they simply sat it in with me, and it felt amazing. They responded with the perfect mix of commiseration, compassion, humor and unity, as only a fellow T1D can do. Five minutes later I got out of the car and went inside feeling more peaceful, less alone, and dare I say it, ready for a good time. My blood sugar was still high, but I felt grounded in the connection I had made with people who truly understood my struggle and said “we’re in this together”. Chronic illness can be incredibly difficult—both physically and emotionally, and sometimes we need someone to help us remember and strengthen who we are apart from our disease.

And even though I have my diabesties to turn to at times like this, I can always use a few more friends with T1D to lean on and be leaned on.  That is why I am looking forward to ConnecT1D Retreat for adults and teens with T1D in Seattle June 25-26. ConnecT1D Retreat is open to our spouses/partners too with special gathering time just for them. Parents of teen/young adults with T1D  and high school nurses have Saturday evening sessions.

Each time I attend an event like ConnecT1D Retreat where I am surrounded by people with T1D who understand me, I feel empowered to tackle whatever life and T1D has in store for me.  And, best yet, I know I'll leave the retreat with 1 or 2 new diabuddies who will have my back long after the retreat is over."

ConnecT1D Retreat is a 1-2 day program for adults and teens with type 1 diabetes. It takes place in downtown Seattle on Saturday June 25 with an overnight option and day 2 for adults near Bainbridge Island on Sunday, June 26. ConnecT1D Retreat is not a fitness retreat, or a nutrition or insulin technology retreat. The purpose is to introduce attendees to a community that understands their unique challenges; it's about inspiring others and being inspired by people with T1D. For more information or to register, please visit connect1d.org.

March 29, 2016

Bolus and Barbells!

There’s an amazing new event for T1Ds in the works! Bolus and Barbells is about bringing together like minded individuals that share a common love of strength sports while dealing with diabetes. The first Bolus and Barbells event will take place on June 11th, 2016, in Leander, Texas.

This new event series was started by Rodney Miller, a type 1 diabetic for over 28 years. Rodney is currently an admin for the Type 1 Diabetic Athletes Facebook group and competes in powerlifting and strongman competitions. Recently Rodney has started using strongman demonstrations as a way to portray type 1 diabetics in a positive light. We're big fans of this T1D Superman!

Since beginning his journey to bring awareness to type 1 diabetes Rodney has been featured on KMID Channel 2 news deadlifting a car to raise money and awareness, and has spoken at HealthSouth Regional Hospital. He was part of the film Type 1 Day 1, has been featured on Beyond Type 1, and provided an educational booth at several local ADA events including a strongman demonstration at the 2015 ADA Step Out Walk in Midland, Texas. Rodney has been a guest on the Diabetes Power Show, and provides coaching and nutrition programs for non diabetics and diabetics alike.

For more information on Bolus and Barbells visit www.bolusandbarbells.com

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The material on this website is for informational purposes only and is not intended to constitute or be a substitute for medical advice from a qualified medical or mental health professional. The individuals associated with We Are Diabetes are not medical or mental health professionals. We Are Diabetes does not endorse any specific treatment centers, physicians, healthcare providers, mental health professionals, tests, products, services, procedures, opinions, or other information that are mentioned on the web site.

Always consult your physician or other qualified healthcare or mental health provider for advice, diagnosis and treatment of any health-related matter, including relating to diabetes and/or eating disorders. If you think you may have a medical emergency, call your doctor or 911 immediately.